I first found out about Joshua’s family while this little guy was still in hospital from a mutual friend. Joshua had been born with Trisomy 21 and an associated cardiac issue, he endured through open heart surgeries and spent his first 122 days of life in NICU at the Royal Children’s Hospital, finally he had been discharged to start his life at home with his Mummy and Daddy.
Because Joshua’s Mum and Dad had missed out on newborn photos we decided to take some sleepy photos of Joshua first as he was due for a nap. Joshua had in his nose a special tube which goes in past his stomach and which was hooked up to a pump and was feeding him continuously through our photography session. This was no problem for me as I am used to seeing these tubes and pumps through my NICU career.
Joshy had a pretty dramatic zip scar on his chest which I felt was important to document as well, it showed just how far he has come in such a short period of time. We should always be proud of our battle scars!
During the lifestyle part of Joshua’s session we concentrated on the love between his family, there was virtually no direction on my end. The love between them was amazing to witness and document. Joshy was starting to get a little bit tired but still had some little grins for his Mummy!
UPDATE from Joshua’s Mummy…
Joshua is 9.5 months now, and a heavy 8.3kg! He’s still receiving feeds through the nasogastric tube but our main goal this year is to work on weaning the tube and going onto feeds via mouth. This will be a journey.
He is much more alert these days compared to when Sarah took the sleepy photos of him when we came back from hospital at four months of age!
Josh had his first Christmas which was very special, and over the break we took him to his first trip to the beach! Liked the water splashing but not the bright sun shining on his face!
For a few months, Joshy had been rolling onto his tummy and getting stuck, but recently he learnt how to roll onto his back, which was so exciting I squealed and frightened him, oops!
We look back at the beautiful photos Sarah took for us and just can’t believe how much Joshy has grown and how far he’s come! He’s growing too fast!!
I am very passionate about photographing children with additional needs. All children should have photos and memories but sometimes it is hard for parents of special needs kids to get their head around every day life yet alone throwing a photographer into the mix! I make it super easy for parents by photographing on location in their own homes, I am flexible with timing and work quickly because often children with additional needs tire quickly. In my photography career I have photographed many children with autism, cerebral palsy, prematurity, vision impairment and Trisomy 21.
I am also a very proud member of the volunteer organisation called Heartfelt. Many people know that Heartfelt photograph babies who have passed away but we also photograph older children with life limiting illnesses. If you would like to donate to Heartfelt you can through the website or if you are a photographer who think that you have the heart to photograph for Heartfelt please make contact via the website.
If you are the parent of a child with additional needs please make contact with me, I would be absolutely honoured to take your child’s photos.